Rett UK Helpline

Rett UK Helpline is dedicated to providing free and confidential support, information, advice, guidance and advocacy, however you choose to contact us.

When you contact us you will connect with one of our trained support staff who will listen to you and work with you to help you through issues, struggles and challenges. We are here for everyone.

We will provide information specifically about Rett syndrome and how it may affect the one you care for. We can work with professionals to ensure the person with Rett syndrome receives the best level of care possible. We can provide ongoing advocacy support in difficult and challenging situations, supporting you at meetings, writing statements and working with your local teams. We can offer training too, which will raise awareness of Rett syndrome and the best practice and management of the rare condition.